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- Видео 159
- Просмотров 128 516
Dementia Action Alliance
США
Добавлен 16 сен 2014
The Dementia Action Alliance is a non-profit national advocacy & education organization of people living with dementia, care partners, friends & dementia specialists committed to creating a better society in which to live with dementia. We are working to eradicate stigma, promoting ‘Nothing About Us Without Us’ inclusion, educating physicians and other healthcare practitioners, enhancing understanding about symptoms and strategies for changing abilities, improving care practices, and identifying beneficial technologies.
ADA Protects Your Right to Vote (Carrie Leljedal) EP #61
Carrie is working with various organizations to make sure people with all types of developmental and cognitive changes understand they have a right to vote - in spite of their disabilities. The ADA protects people with special needs to ensure you are provided with the assistance you need to vote. Learn strategies to help with voting challenges.
Просмотров: 12
Видео
Exploring Artificial Intelligence (Aqueasha Martin-Hammond, Ph.D.) EP #60
Просмотров 613 месяца назад
What is Artificial Intelligence (AI)? Aqueasha explains AI, what it does and how AI can be beneficial for the dementia community. Explore platforms and applications that could simplify your life or routine.
The Essentials of Well-Being (Michelle Daniel) EP #59
Просмотров 1103 месяца назад
Michelle Daniel explains the Eden Alternative’s Seven Domains of Well Being and how they are used as a problem-solving tool within the context of elder care and support. These are fundamental aspects of personhood represent the core of the Eden Alternative’s framework. Michelle also explains the definitions of “Elder” and “Elder Care” and situates the terms within a vocabular of respect.
Anitra (“Nia”) Mostacero - Ep #44
Просмотров 2216 месяцев назад
Anitra (“Nia”) Mostacero shares her experience with 22 years in the military, living with dementia, being crowned Miss Meridian Idaho and how she will continue dementia advocacy as a 2024 Miss Idaho candidate. “As your Miss Meridian Idaho 2024, I’m proud to actively advocate for my platform “Memories Matter: Combating Young Onset Dementia Stigmas”. I fight for Early Detection, Treatment and a C...
Why is it Difficult to Determine a Dementia Diagnosis? (Brian Appleby, M.D.) Ep #58
Просмотров 1,2 тыс.7 месяцев назад
It is not uncommon for people to receive two or three different diagnosis on their type of dementia. Dr. Brian Appleby explains why it may be difficult to diagnosis a precise type of dementia, what information we can provide to help with the diagnosis process and the function and relevance some tests have in helping to determine a proper diagnosis.
A Care Partners Love Story (Barbara Wood) Ep #43
Просмотров 2968 месяцев назад
This is a true love story from an exceptional care partner! Barb Wood shares her strategies and joy of being a care partner for her husband Bob for eleven years and how she applied her teaching skills to help him stay healthy, safe, and happy. She also introduces their book Voices from the Forest.
The Hidden Disabilities Sunflower Program (Lynn Smith) Ep #57
Просмотров 1308 месяцев назад
The Hidden Disabilities Sunflower is becoming a world recognized symbol to recognize individuals with a hidden disability or condition which may require special assistance. As the wheelchair symbol represents a physical disability, the sunflower symbol represents a non-visible disability. Join guest Lynn Smith as she shares the excitement of this program rolling out in the USA.
Christie Diez - Emmy Winner for Dementia Docuseries
Просмотров 1119 месяцев назад
Journalist Christie Diez shares the excitement of winning an Emmy for her docuseries “Desperately Waiting” and the important role DAA played in providing insight of lived experiences of people living with dementia.
Anosognosia Diagnosis vs Denial (Susan Wehry) Ep #56
Просмотров 2699 месяцев назад
Anosognosia: Dr. Susan Wehry explains what it is, what causes it, how it differs from denial and why it matters. She also offers tips on how to best help someone with anosognosia.
Thoughts & Talk of Suicide After Diagnosis (Susan Wehry) Ep #55
Просмотров 10910 месяцев назад
Dr. Susan Wehry discusses “thoughts and talk” about suicide after a terminal illness diagnosis. She provides answers to “Are suicidal thoughts a normal reaction?” and “How Can we deal with these thoughts?” and provides guidance on best ways to get through the crisis periods
Dementia Advocacy - Can we/have we made a difference in Dementia Stigma? (Lori La Bey) Ep #54
Просмотров 6611 месяцев назад
How can we continue to change the dementia stigma and how can people get involved to continue this change? Lori La Bey guides us through the changes that have occurred surrounding dementia and how we can continue to make an impact. She also discusses her observations in people living with dementia and staying actively involved.
Jay Allen Part 3: Working through Grief
Просмотров 5511 месяцев назад
Singer, song writer and dementia advocate, Jay Allen is known for his appearance on The Voice and for his song, “Blank Stares” which was written to honor his mother who passed from Alzheimer’s. In this podcast presented by Dementia Action Alliance and Maude’s Awards, Jay shares his struggles with grief and ways he is working through the grieving process through his music.
Jay Allen Part 2: Faith & Purpose with Music
Просмотров 57Год назад
Singer, song writer and dementia advocate, Jay Allen is known for his appearance on The Voice and for his song, “Blank Stares” which was written to honor his mother who passed from Alzheimer’s. In this podcast presented by Dementia Action Alliance and Maude’s Awards Jay shares the joys and challenges of his journey with his Mother’s Alzheimer’s.
Jay Allen Part 1: Care Partner Journey
Просмотров 193Год назад
Singer, song writer and dementia advocate, Jay Allen is known for his appearance on The Voice and for his song, “Blank Stares” which was written to honor his mother who passed from Alzheimer’s. In this podcast, presented by Dementia Action Alliance and Maude’s Awards, Jay shares his experience watching his Mother’s Alzheimer’s progress and how this impacted his life and songs.
Photography Helps with Dementia & Advocacy (Mark Timmons) Ep#42
Просмотров 205Год назад
Mark Timmons shares how photography helps him calm his dementia symptoms and has become an important part of his dementia advocacy.
Improvisation Benefits People Living with Dementia (Ann Marie Mohr) Ep #53
Просмотров 188Год назад
Improvisation Benefits People Living with Dementia (Ann Marie Mohr) Ep #53
The Importance of Dialogue While You Still Can (Dan Hoffman) Ep #52
Просмотров 267Год назад
The Importance of Dialogue While You Still Can (Dan Hoffman) Ep #52
Apathy & Despondency (Dr. Al Power) Ep #51
Просмотров 298Год назад
Apathy & Despondency (Dr. Al Power) Ep #51
Role & Value of a Home Care Partner (Valene Reese & Clancy Blair) Ep #50
Просмотров 184Год назад
Role & Value of a Home Care Partner (Valene Reese & Clancy Blair) Ep #50
Organ donor does not mean Brain Donor! (Tish Hevel) Ep #49
Просмотров 66Год назад
Organ donor does not mean Brain Donor! (Tish Hevel) Ep #49
It is not a Black or a White disease. Dementia affects everyone. | Gretchen Carter Lowery
Просмотров 52Год назад
It is not a Black or a White disease. Dementia affects everyone. | Gretchen Carter Lowery
I want to educate people. | John-Richard Pagan
Просмотров 96Год назад
I want to educate people. | John-Richard Pagan
There is time to live now. | Melissa Hamkins and Meredith Hunt
Просмотров 74Год назад
There is time to live now. | Melissa Hamkins and Meredith Hunt
It is very important to get information out about living with dementia. | Chris Tann
Просмотров 66Год назад
It is very important to get information out about living with dementia. | Chris Tann
I decided to get involved. | Terrie Montgomery
Просмотров 87Год назад
I decided to get involved. | Terrie Montgomery
It was important to take time for myself. | Will Smith
Просмотров 167Год назад
It was important to take time for myself. | Will Smith
Your voice is needed. | Valene Campbell
Просмотров 93Год назад
Your voice is needed. | Valene Campbell
The importance of having a community. | Brian VanBuren
Просмотров 65Год назад
The importance of having a community. | Brian VanBuren
A story to share with the world. | Mary Beth Wighton and Dawn Baxter
Просмотров 145Год назад
A story to share with the world. | Mary Beth Wighton and Dawn Baxter
Thank you again :)
Wowza, grrreat interview Chuck/Bonnie! Sooo many similarities! :) I'm grateful & blessed beyond measure to have participated & benefited in most of the support groups you mentioned(Dementia Mentors, DAA-Dementia Action Alliance, DAI-Dementia Alliance International). Life changing, life giving! Fond memories, thank ya'll!! 🦋🤗🌻
Thank you for the wonderful comment. We are grateful that you are part of the DAA community!
Audiobook?
HI We don't have an audiobook for the manual. You can check out the PDF file for FREE here - daanow.org/pathways/
I'm half way thru, do you eventually talking abt whts in the manual?😊
Gracias so much, dear Teepa :)
'Re-studying ' this again.. So beautiful & basic. Gracias
Recently, I visited Your RUclips channel and I found some problems. I think and believe that if you can fix that problem, your channel will grow very gradually. Then your channel possible to grow. So are you interested in my service?
Bless you dear Teepa
Val your head is big and you look sad. Cheer up!
Strangely enough long term drug/ substance abuse causes memory loss/ psychosis/ seizures/brain damage doesnt it Patrick? And strangely enough after MY SON struck up a freindship with you he now suffers from the same symptoms! From the same drug/substance abuse... Coincidence? No...its no coincidence is it? What happened in London that was your fault Patrick? I found your card to MY SON
"at the mercy of... emotional welling".....yes! Perfect. Right on!
As a trauma survivor this is 100 percent how I feel triggered when showered...I used to cry in the shower. I felt naked inside as well as outside. Violated but no one was in there in shower but me.
and i am on the board so my barbie is just better thab urs
I'm autistic and inclined to go a bit blank in places like supermarkets and railway stations. The lanyard with the autism card was useful as the staff and others would happily offer assistance if I had gone off a bit. However during covid so many people wore them as an alternative to wearing a face mask that the scheme got a bad name.
Watch the Desperately Waiting: Navigating a dementia diagnosis | Full series - www.11alive.com/video/news/special-reports/desperately-waiting/desperately-waiting-navigating-a-dementia-diagnosis-full/85-b7e5a744-1f33-4841-86ba-712859a02e96
Had two family member's that had dementia. It's hard on them, and hard on the family. It takes a lot òf patience.
Where is this book available?
Hi Jill, Our manual is available on our website - Check this link here to access the manual - daanow.org/pathways-to-well-being-with-dementia/
I'm now the person cared for. But when I was young, I nursed. When I nursed in the nursing homes I sang. That seemed to help the patients. Some wanted to pray before they ate. I would say grace and pray for them and their day. I was often called on to help with "difficult" patients. I loved helping them❤ Thank you for your help and support for all of us. You've helped me understand myself and why I have some difficulties. I can still do most things, but I have trouble understanding some people and what they want of me. Thank you for making me feel ok about myself...a little vulnarable and overwhelmed some times, and then courageous and strong other times. Thank you Teepa❤
Thank you for sharing your story! DAA has a manual called Pathways To Well-Being With Dementia: Manual Of Help, Hope And Inspiration. You can download it for free here - daanow.org/pathways-to-well-being-with-dementia/
To learn more about Dementia Action Alliance, please visit our website: daanow.org/
To learn more about Dementia Action Alliance, please visit our website: daanow.org/
To learn more about Dementia Action Alliance, please visit our website: daanow.org/
To learn more about Dementia Action Alliance, please visit our website: daanow.org/
Thank you.
thank you for watching our video! To know more about DAA - please check our website - daanow.org
Excellent interviewer and interviewee.
thank you for the comment! You may want to check out the paper for Calling All Voices: Stories from Black Community members on Learning to Live Well with Dementia - daanow.org/papers-webinars/ :D
Where are you working now
Are you divorce Doctor Potts
Very helpful! ❤❤❤
Thanks, Dan, for sharing this podcast and for doing it. I had never heard of Dementia Action Alliance. It seems like a wonderful resource. You continue to inspire and educate, every step of the way. Sending lots of love to you, Catherine, and the whole family. <3
Hi, You can check out our website to know about our mission - daanow.org/
Thanks so much, Dan. You have shared so much, and have been so brave , it continues to break my heart, know ing how much you and your family endure. But I do appreciate your openness, and in typical Hoffman fashion, how you are helping others. Love, Irene
Thank you for watching the podcast!
As always, Al is great inspiration for us to pursue a more humanistic and person-centered approach to care.
Clancy Blair ROCKS! It's such a pleasure to know him.
Tru here. THANKS for posting
Thank you so much for speaking candidly and honestly, Patrick! You likely have helped many people. 🤗
Such a privilege to work with all of you. And personally to Chris Covell for being such a gracious host.
loving with Dementia . People can still live a very good life still go places meet people , laugh
Yes! All voices. Thank you DAA.
I use many of Teepa’s tips when showering my 88 yr old mom…what I’ve been doing is turning the water and small heater on and let everything heat up while mom is on the toilet, then ask my mom to check if the water is warm enough. She gets into the shower without a big conversation about why she “should” be getting in. She’s concentrating on the water temp, instead of fighting with me about not taking a shower.
Hi Ellen, that's great to hear about your mother! DAA has a new monthly discussion group for care partners of individuals living with dementia. It starts on January 11 Wednesday at 8:00 pm EST. if you would like to join, just email us at daapodcasts@gmail.com.
There's no such things as safe communities. I am Elijah and I have been attempted to be killed by the fake churches, my own family, the police, the employees at a homeless shelter, and you would probably do it too. Are you attending the fake churches that know every time they take more money they kill more people with covid? Then you are also a murderer. Malachi 3:8 is telling the thieving ministers to all return the money to end covid and they know this and they have known it for over 2 years. That means they are lying straight to the faces of every single person inside their congregations. That means for over 2 years every time they took more money they knew more people would die with covid and they are still doing it! That proves to you anyone charging for the gospel in absolutely anyway serves Satan. Anyone still attending the fake churches must repent for supporting evil murderers and never go back if you want out of the Great Tribulation that started September 1st. Until you either repent or die your torment will get worse and worse.
Way to go team! ❤
He sounds so cogent and articulate. Hard to believe he has Alzheimer's.
Ow
thank you the tip about the towel is fantastic!
Hello! I was diagnosed with your nonsense dementia this past December and I think that you guys are doing a great job with this. But I was wondering where you were located I live in Maryland
Sorry for the typo that should say young onset dementia
Hi @lorrosen! Our programming is all virtual and available to people in any location. Our core staff is located in Central Virginia, but we have no concentration of program participants in any specific part of the country.
I wish I coils talk
Pills can not help a damaged Brain jr and Laurie. Good job I’m trying to go but time is fleeting
I agree, my doctor announced it and see you in six months! That is not the way to tell us .
Have a great conference in sept guys xxxx
Thanks Norms!
Thank you so much for this! I have early onset dementia and Alzheimer’s. Each of my parents have Two of the Alzheimer’s Dean and I got all four. I try to stay positive sometimes it’s difficult as you know. Thank you so much for this I also have posterior cortical atrophy and my vision is really bad. I get not recognizing people that you’ve known for a long time. I’m trying to stay positive and surround myself with people who understand and who love me. Again, thank you so much.
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Great interview! I agree she IS a superwoman! :D
Great video. But the subtitles and captions need to be turned on to make this accessible.
Thank you DAA for helping us who live with dementia believe in ourselves!